This is M.E.

I shared this poem via a virtual campaign, on May 12th this year, which is international ME Awareness Day. Roughly 17 million people worldwide are living with this debilitating neuro-immune multisystemic illness. We all had lives Before. We had dreams, goals; We were full of ambition. Carefree and silly Young and free. We moved through the … More This is M.E.

Poetry Mondays: M.E.

Listen to learn; don’t listen to answer. Your look of judgement Comes from ignorance. Your cruel words Come from a lack of empathy. Your understanding will only Come from Listening. Just listening. From then, will my words Walk you through The pain I endure. The sacrifices I’ve made. The loss I’ve tried to make up … More Poetry Mondays: M.E.

The A-Z of ME/CFS

It is estimated that around a quarter of a million Australians have Myalgic Encephalomyelitis/Chronic Fatigue Syndrome (ME/CFS) – there is currently no government funding for researching this condition. Therefore, money is raised by non-for-profit organisations, patients, crowd funding and through private donations. ME/CFS is so much more than simply being ‘tired’ – no amount of ‘getting some sunshine’, ‘rest’ … More The A-Z of ME/CFS